What About the Boy? is a memoir about parents who become dissenters, albeit in the cause of achieving normal life, for themselves and their child. The characters in the story are protesting a medical protocol that, in their view, offered nothing to a baby who was obviously in great distress.... read more
Nobody knew what hurt little Joseph. Perhaps some toxin had invaded his mother's body before his birth. Perhaps it was the difficult birth itself. Or maybe the origin of his disabilities was genetic. Whatever the cause, something had gone terribly wrong--but no one was offering solutions or... read more (warning: may contain spoilers)
Nobody knew what hurt little Joseph. Perhaps some toxin had invaded his mother's body before his birth. Perhaps it was the difficult birth itself. Or maybe the origin of his disabilities was genetic. Whatever the cause, something had gone terribly wrong--but no one was offering solutions or reasonable guidance.
He cried most of the time, and thrashed about as if in great pain. He wasn't learning how to crawl, talk, or interact normally. His parents sought medical help and were told at first not to worry so much. Later, the professionals recommended counseling to help the parents accept reality. Nothing could help their son, and the quality of their own lives was at risk.
Refusal to accept that advice launched an improbable journey that changed their lives forever.
WHAT ABOUT THE BOY? A FATHER'S PLEDGE TO HIS DISABLED SON chronicles a family's rejection of hopelessness and their pursuit of a normal life.
1 Someone to Love
2 A Growing Child
3 “You Can Save a Life”
4 Not a Doctor?
5 The Parting of the Ways
6 Two New Paths
7 “This Little Boy Is in Pain”
8 “You’ve Got a Friend in Pennsylvania”
9 A Stroll Across the Room
10 Catch the Spirit
11 Making the Way Easier
12 Revisits and Victories
13 The Benefits Were Obvious
15 The Life Plan
16 What to Do About the Rhino
17 Four-Point-Eight Months in Six
18 The Hugging Program
20 Black-and-White Reality
21 Parents Who Could Not Imagine How Little They Knew
22 An Introduction to the Machine
24 A Bit Generic
25 Course Corrections
26 The Evidence of Things Not Seen
We’re hiding the errata, books that influenced this book, books influenced by this book, books that cite this book and books cited by this book sections. If you would like to add content to them, you must first make them visible.